Neuropalliative care is an emerging field of clinical care dedicated to improving the quality of care for people living with neurological disorders and their loved ones by bringing together the fields of neurology and palliative care.1 This includes patients living with Parkinson’s disease and Movement disorders, as well as other neurological diseases. The International Neuropalliative Care Society (INPCS) is a newly established society with a focus on building human connections in neurology, breaking silos between traditional medical walls, and keeping the person who is ill at the center of all of the efforts. The overarching purpose of INPCS is to foster the growth of this field through a unique, diverse, and global community.
INPCS connects clinicians, researchers, interdisciplinary team members, people living with neurological illness, family members, and advocates at the intersection of neurology and palliative care. Through thought, leadership, advocacy, and support, INPCS is quickly becoming a hub where inspiring ideas and innovation are shared around the world. Their recently launched new website, www.inpcs.org, offers complimentary educational resources for both healthcare professional and families/advocates, educational offerings, the EPEC-Neurology Curriculum, a members discussion forum, and links to related organizations.
INPCS will hold their inaugural Annual Meeting, Taking Flight, on November 4-6, 2021. The online conference will offer attendees the opportunity to learn from experts, hear updates in practice patterns, review the state of the science in neuropalliative care, and network with others interested in this growing field.
To learn more and to join the Society visit www.inpcs.org, where you will find information on membership, meetings, and resources. With the help of their members and community, INPCS can continue fostering the growth of the emerging field of neuropalliative care by listening to people affected by these illnesses, building professional networks, supporting research, developing educational materials, creating guidelines for clinical practice, and advocacy.
The Lancet Neurology. New hope for advancing neuropalliative care. Lancet Neurol. 2021 Jun;20(6):409. doi: 10.1016/S1474-4422(21)00142-3. PMID: 34022158.
Neuropalliative Care Resources
Ali Mendelson, MD, is a neurologist and palliative care physician and a Clinical Assistant Professor of Neurology at UW School of Medicine. She received her MD from Weill Cornell Medical College and is double board-certified in Neurology and Hospice and Palliative Medicine. As a neuropalliative care physician, Dr. Mendelson feels it is a true privilege to learn and understand each person’s story and prioritize what matters most to them and their loved ones. Dr. Mendelson partners with patients, families, and treatment teams to provide high quality, compassionate, and individualized care that aligns with each patient’s goals and values, and she strives to improve quality of life for patients, families, and caregivers by guiding conversations, providing comfort, and preserving dignity. Dr. Mendelson’s research explores the use of photographs as a novel tool to bring dignity to patients and help clinicians recognize the meaning in their work.
Ambereen K. Mehta, MD, MPH is an Assistant Clinical Professor of Palliative Medicine at Johns Hopkins Bayview Medical Center, where she graduated from the Internal Medicine residency and joined as faculty in July, 2020. She completed her fellowship in Hospice and Palliative Medicine at the National Institutes of Health in 2016, after which she joined as faculty at the University of Virginia. At UVA her practice included inpatient palliative medicine consults, outpatient palliative medicine in an oncology clinic, and she was medical director of an inpatient hospice unit. She was also the Associate Program Director of the Hospice and Palliative Medicine fellowship. In 2018, she joined the faculty at the University of California, Los Angeles where she practiced as an inpatient palliative medicine consultant and created an outpatient neuropalliative position in the multidisciplinary ALS clinic. She is chair-elect of the Neuropalliative SIG of the American Academy of Hospice and Palliative Medicine.