We’re better together.
We believe in collaboration and in offering you the best resources from across our community. Read on to see additional resources near you.
Community Bulletin Board
03.01.2023
SMEK Survey
We’re SMEK (Sravya, Madison, Esha, and Katie)! We’re a team consisting of four motivated high school junior girls from North Carolina, looking to make a difference using technology. This year, we’re participating in a competition called Technovation, where we are required to build an app that helps to alleviate a particular issue.
This year, we are designing an app to help patients with Parkinson’s Disease, and would like to gain more perspective on this disease and the needs of Parkinson’s Disease patients. We’d like to learn more about the struggles they face and what we can do to help. TAKE THE SURVEY HERE.
Parkinson’s Wellness Report Assessment
The Parkinson Wellness Report is a free assessment that can help people evaluate their physical and non-motor symptoms related to Parkinson’s disease. The survey takes only a few minutes to complete and provides personalized recommendations for managing symptoms and improving quality of life.
You can access the Parkinson Wellness Report Assessment at the following link: https://www.beyondrehab.health/pd-assessment
Kansas City Clinical Neuroscience Society Online (Free!) Education Series
3/6: Use of On-Demand Therapies – Register here
3/14: Role of Infusion Therapy, Deep Brain Stimulation and Focused Ultrasound – Register here
3/15: Pointers For Living Well With PD – Register here
02.22.2023
Survey: Use of aides/tools for Activities of Daily Living (ADL) for Parkinson’s and other movement disorders
The purpose of this survey is to gather information about what types of tools, aides or other products might be useful for people with Parkinson’s and related disorders. CLICK HERE to take the survey.
02.03.2023
STEM-PD Clinical Trial
Are you living with Parkinson’s symptoms? If so, you may be eligible to take part in a clinical trial that will determine whether a non-invasive investigational device improves motor and non-motor symptoms of Parkinson’s. CLICK HERE to learn more.
Functional Impact of Young Onset Parkinson’s Disease Survey
An Exploration of YOPD on Function. TAKE THE SURVEY HERE.
Medication Access Survey
Public policy impacts people living with Parkinson’s and other movement disorders every day. Accessing the medicines and therapies we need, what hurdles we have to jump through to get them, how much we pay for them and what new therapies advance through the pipeline—public policy influences it all. TAKE THE SURVEY HERE.
IT’S JUST PARKINSON’S Film Release
IT’S JUST PARKINSON’S is an inspiring and emotional look at one man’s journey to live life to the fullest while living with a disease that has no cure. WATCH THE FILM HERE.
Additional Resources
We also have a wide range of resources throughout the world to help you find local support groups, Parkinson’s organizations, exercise and wellness groups, treatment options, financial assistance, and more!
