Getting Real!™ Online

Care partners need information that is reliable and comprehensive without having to waste precious time digging through the vast options online that may not be reputable or only scratch the surface. Getting Real!™ Online is that resource!

Getting Real!™ Online is a virtual community for care partners, adult children and family that includes an educational video library covering topics from symptoms, practical tips for management, to support in short, bite-sized videos you can access anytime day or night.

Getting Real!™ Online will also offer chat forums based on some of the specific topics where care partners and adult children can interact and share with others beginning in May. The video library will be constantly evolving, and the series will also feature live programming each month that will include facilitated discussion and roundtable groups which begins in June.

This program is for care partners and adult children only. If you are the person living with the disease, check out our full line-up of livestream programs.

FAQs

What is Getting Real! ™ Online?

Getting Real! ™ Online is an online community for care partners, adult children, and family that includes an educational video library covering topics from symptoms to practical tips for management, all in short, bite-sized videos you can access anytime day or night. The community also includes chat groups, and members can join monthly facilitated discussions and roundtable groups offered live via Zoom. This program is only for care partners, adult children, and family who help care for someone with Parkinson’s.

How do I access Getting Real!™ Online for the first time?

You will first need to register for our program. Remember, this program was created for care partners and the family network, so if you are a person with a movement disorder, we ask that you check out one of our many other programs here.

Once you register by filling out the form here, you will be e-mailed a survey that you must fill out. Once you have completed this survey in full, one of our staff members will give you access to the Getting Real! ™ Online learning portal. Once they have done this, you will receive an e-mail confirmation walking you through setting up your password.

How do I access Getting Real!™ Online after I have registered?

If you have already registered and set up your account you can access Getting Real! ™ Online by clicking here. It is recommended that you bookmark this website so that you can access it easily in the future.

What do I do if I forget my Getting Real!™ Online password?

If you forget your password, simply navigate to the Getting Real! ™ Online login page here and click ‘forgot password’. You will receive an email with a link to reset your password.

How do I watch the Getting Real!™ Online videos?

To access the continually expanding video library, log in to Getting Real!™ Online if you haven’t registered, please do so before attempting to access this resource. Once you have logged in you will click on “learn” in the menu and choose “course catalog.” There, you will find our catalog of sessions/topics, which contain individual videos on specific subjects related to that session. It is recommended that you watch all the videos, but you can pick and choose which topics you want to hear about.

What is the difference between Getting Real!™ and Getting Real!™ Online?

Getting Real!™ and Getting Real!™ Online are sister programs specifically for the loved ones of people with movement disorders. Getting Real!™ is an in-person workshop focused on activities of daily living and common symptoms that accompany disease progression. These workshops include intimate conversation with movement disorder physicians and identify tools to aid in the communication about disease progression so that people can continue to live their very best life, despite diagnosis. Getting Real!™ Online continues these conversations and builds on this workshop, offering the chance for loved ones to connect with one another and walk side-by-side as we all navigate these diseases together.

What if I don’t have a lot of time to watch videos?

That is exactly why we created this resource! You can log in and watch the short videos on demand, on your schedule! Videos are short, ranging from 2-20 minutes. Pick and choose what videos interest and are relevant to you and your loved ones needs.

What is a chat group and how do I participate in them?

Chat groups are topic-specific message boards where you can share, ask questions, and communicate with other care partners who are navigating the same waters, even if they are on a different boat. The groups are designed to encourage dialogue that enhances the learning experience and offers support through shared experience. These groups can be found under “Connect” in the Getting Real!™ Online site menu and topics include advanced care planning, hallucinations and delusions, managing mobility, and many more.

What is a facilitated discussion group and how do I participate in them?

Our facilitated discussion groups are regular support groups for care partners and adult children. Some will be open discussion; some will be in a roundtable format and focused on a pre-chosen topic.  To participate in these groups, you can navigate to “Connect” in the Getting Real!™ Online site menu. We will list all upcoming groups on the website and via e-mail to registered participants.

Can I share the videos with friends and family?

Sure! This is a free resource for anyone with a loved one with PD, and we encourage you to share with your close friends and family. While videos cannot be downloaded, we recommend that you send your loved ones the registration link and invite them to join!

How can I request a new topic on Getting Real!™ Online?

We are committed to making this resource a vital part of your journey. We would love to hear about the topics you are interested in, or what topics would be beneficial or helpful as you navigate these diseases. To request a topic, please fill out this form here.

How can I share my experience utilizing Getting Real!™ Online?

We absolutely welcome any and all feedback on our Getting Real!™ Online resource! We would love to hear from you! To leave feedback, please fill out this form here.