Dear newly diagnosed person and loved ones,
First and most importantly, as you take the first steps in this new journey, please know that the PMD Alliance team is here for you. We will ride the waves with you as you embark on this unexpected and seemingly perilous journey. We know, as you do, that you are more than your disease. We also know that no one with a movement disorder exists in isolation. This is a team sport, and we are looking forward to being a part of your team in three ways: through in-person events, community-based support, and on-line opportunities.
While PMD Alliance has a national reach, we have carefully designed our service model to ensure a personalized, community-level operation wherever possible. We maintain the only public, nationwide database of support groups and exercise programs spanning hundreds of communities. If you are looking for support in your area, please check our website or reach out to us by phone or email and we will help to get you connected.
You can always be close to PMD Alliance and its resources, no matter how many miles may separate us from you. NeuroLife Online lives up to its name. It includes a growing number of on-line educational, social and support service segments for everyone (person with the disease, spouse, care partner, adult child, support group leader and more). We invite you to explore these opportunities on our website, but we especially encourage you to join us at the next monthly live-stream educational session, Lunch with Docs.
Our Ambassadors are available to talk with you, at any time on this journey, help you link with local support systems, physician experts and ensure you are in the loop about the more than 75 educational conferences and live-streams we provide each year. We look forward to meeting you in person and seeing you on line. To connect with one of our Ambassadors please complete the brief form below or email us at info@PMDAlliance.org.
Your partners in this journey,
The Staff & Volunteers at PMD Alliance