National Resources

National Organizations

American Parkinson's Disease Association (APDA)

135 Parkinson Ave.
Staten Island, NY 10305-1425
Tel: 718-981-8001; 800-223-2732; 877-223-3801 (Young Onset Center)
apda@apdaparkinson.org
APDA Website

Bachmann-Strauss Dystonia & Parkinson Foundation

P.O. Box 38016
Albany, NY 12203
212-509-0995
info@bsdpf.org
Visit Website

Brain Support Network

PO Box 7264
Menlo Park, CA 94026
Robin Riddle – 650-814-0848
Blog
Brain Support Network Website

Caregiver Action Network (CAN)

1150 Connecticut Ave, NW, Suite 501
Washington, DC 20036-3904
202-454-3970
info@caregiveraction.org
Caregiver Action Network Website

CurePSP

1216 Broadway, 2nd Floor
New York, NY 10001
800-457-4777
info@curepsp.org
CurePSP Website

Davis Phinney Foundation

357 S McCaslin Blvd, Ste 105
Louisville, CO 80027
Sarah Brockman, Program Manager – 866-358-0285
contact@dpf.org
https://www.davisphinneyfoundation.org/

Family Caregiver Alliance

101 Montgomery St., Suite 2150
San Francisco, CA 94104
info@caregiver.org
Family Caregiver Alliance Website

Huntington’s Disease Society of America

505 Eighth Avenue / Suite 902
New York, NY 10018
800-345-HDSA (4372)
HDSAinfo@HDSA.org
HDSA Website

International Essential Tremor Foundation

P.O. Box 14005
Lenexa, KS 66285-4005
888-387-3667 (toll-free); 913-341-3880
info@essentialtremor.org
Visit Website

Lewy Body Dementia Association

912 Killian Hill Road, S.W.
Lilburn, GA 30047
LBD Caregiver Link: 888-204-3054
National Office: 404-418-7396
office@lbda.org
Visit Website

Michael J. Fox Foundation for Parkinson's Research

Grand Central Station
P.O. Box 4777
New York, NY 10163-4777
Veronique Enos Kaefer  – 1-800-708-7644
Michael J Fox Fdtn Website

MSA Coalition

9935-D Rea Road, #212
Charlotte, NC 28277
866-737-5999
Info@multiplesystematrophy.org
https://www.multiplesystematrophy.org/

National Ataxia Foundation

600 Highway 169 South, Suite 1725
Minneapolis, MN 55426
763-553-0020
naf@ataxia.org
National Ataxia Fdtn Website

Parkinson Alliance

P.O. Box 308
Kingston, NJ 08528-0308
Tel: 609-688-0870; 800-579-8440
Parkinson Alliance Website

Parkinson Foundation

1359 Broadway, Suite 1509
New York, NY 10018
800-473-4636
contact@parkinson.org
Parkinson Foundation Website

Parkinsons News Today

%BioNews Services, LLC, 1601 Market St., Suite 20A105
Philadelphia, PA 19103
info@bionewsservices.com
Visit Website

Parkinson's Resource Organization

74-090 El Paseo, Suite 104
Palm Desert, CA 92260
Tel: 760-773-5628; 877-775-4111; 877-775-4111
info@parkinsonsresource.org
Parkinson’s Resource Website

The Association for Frontotemporal Degeneration

290 King of Prussia Rd., Radnor Station Bldg 2, Ste 320
Radnor, PA 19087
866-507-7222
info@theaftd.org
The AFTD Website

The Parkinson's Institute and Clinical Center

2500 Hospital Drive
Mountain View, CA 94040
408-734-2800; 800-655-2273
info@thepi.org
Parkinson’s Institute Website

Tremor Action Network

PO Box 5013
Pleasanton, CA 94566-0513
510-681-6565
Tremor Action Network Website

U.S. Dept of Veterans Affairs - Parkinson’s Disease Research, Education and Clinical Centers

Dawn McHale, Philadelphia VAMC – 215-823-5800 ext. 2238
Lori Anzaldo, San Francisco VAMC – 415-221-4810 ext. 2485
PADRECC Website

Well Spouse Association

63 West Main St, Suite H
Freehold, NJ 07728
732-577-8899
WellSpouse Website

Financial Assistance

Melvin Weinstein Parkinson’s Foundation

2224 Va Beach Blvd., Suite 205
Virginia Beach, VA 23454
757-313-9729
mwpfassistance@verizon.net
MWPF Website
Funding for Medical Equipment, Medications, and Services

Parkinson Wellness Fund

7924 Ivanhoe Ave, Suite 2
La Jolla, CA 92037
russell@themeyrowfoundation.org
PWF Website
The only eligibility requirement is a PD diagnosis. The primary focus is to improve quality of life. Examples include: 6 month boxing membership; 3 months private physical therapy; wheelchair.

Realm of Caring

719-347-5400
realmcares@theroc.us
Realm of Caring Website
Cannabinoid Therapy Assistance

The Assistance Fund

4700 Millenia Blvd., Suite 410
Orlando, FL 32839
855-845-3663
The Assistance Fund Website
Copay Assistance, Insurance Premiums and Incidentals and Health Care Expenses

Exercise & Wellness

Brian Grant Foundation

650 NE Holladay St., Suite 1600
Portland, OR 97232
Katrina Kahl – Executive Director
info@briangrant.org
Blog
Brian Grant Fdtn Website
Non-Profit Online exercise videos; professional training (with CEUs)

Dance for PD® - Mark Morris Dance Group

3 Lafayette Ave.
Brooklyn, NY 11217
1-800-957-1046
Dance for PD Site
Non-Profit Exercise Program, Training, and DVDs

GZ Sobol's Parkinson Network

1675 Linden Avenue
Boulder, CO 80304
303-378-4732
info@parkinsonsnetwork.org
https://www.parkinsonsnetwork.org/
Non-Profit Exercise Program and Training

Invigorate Physical Therapy and Wellness

Dr. Sarah King
https://www.invigoratept.com/
On-line Physical Therapy Program

LSVT Global

4720 N. Oracle Ste. 100
Tucson, AZ 85705
888-438-5788
info@lsvtglobal.com
LSVT Global Website
Speech and Exercise Classes and Training

MOVE IT! - An Exercise and Mobility Guide for Parkinson's Disease

Ohana Pacific Rehab Services
354 Uluniu Street, Suite 404
Kailua, HI 96734
808-262-1118
Move It!
Exercise Book and Video

Ohio Health - Delay the Disease

Rocco Presutti – 614-566-1189
delaythedisease@ohiohealth.com
DTD Website
Non-Profit Exercise Program and Training

Parkinson Voice Project

646 N. Coit Rd., Suite 2250
Richardson, TX 75080
469-375-6500
contact@parkinsonvoiceproject.org
Parkinson Voice Project
Non-Profit Speech Therapy Program and Training

Pedaling for Parkinson's

Cleveland, OH
Nan Little – 206-321-0200
Pedaling for PD
Non-Profit Exercise Program and Training

PWR! - Parkinson Wellness and Recovery

140 W Fort Lowell Rd
Tucson, AZ 85705
520-591-5346
info@pwr4life.org
PWR! Website
Non-Profit Exercise Program; Training; Online Wellness Series

Rock Steady Boxing

Rock Steady Website
Exercise Program and Training

Tremble Clefs

trembleclefsinfo@gmail.com
Tremble Clefs
Non-Profit Singing Group and Training