Support Group Leaders

Support group leaders are a crucial part of the Movement Disorder Care & Support Ecosystem© and play a leading role in The Community Network. PMD Alliance recognizes the effort and care volunteer leaders put into their support groups, and we want to support you! Below you will find programs and resources designed especially for you, and we invite you to join us to connect and network with group leaders across the country!

Training and Content

In Sync!® Online Training Library

Our In Sync!® Online Livestream Training Library is a collection of the myriad trainings and support tools we have provided to other support group leaders.  This resource is to help you do all you can to help others and yourselves!

 

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Upcoming Online Events

We regularly provide live, online training content to meet the needs of the community. This constantly updated. Check back often to learn more information and gain new skills.
Find an Event

Upcoming In-Person Events

This will direct you to our upcoming events. Use the search to see if any are scheduled in your area.
Find an Event

Zoom Tutorial Videos

Learn the fundamentals of how to join, schedule, and host online support group meetings using Zoom. Get more comfortable with meeting settings and the tech behind hosting a support group online plus managing the flow of conversation in an online setting.
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Online Meeting Content

So you moved your group online. Now what? Great news: the same content that your group members asked for in-person can translate to online! Here are a few ideas from our In Sync® Support Group Leader Reference Guide to get your creative juices flowing.
Download

Create a Phone Tree

If not all of your support group members are tech savvy enough to use Zoom and join virtually, what can be done? Phone calls help group members stay in touch with each other, and connect on a deeper level. Download our phone tree resource and get dialing!
Download

Introducing Office Hours:

One-on-One Guidance & Support for Prospective & Practicing Support Group Leaders.

Bilingual direct help line with Clemie Pizzillo, Community & Support Group Initiatives Associate Director 

Mondays 1-5pm PT  •  (520) 833-3211 

If you ask yourself these questions, then call Clemie: 

  • I’m inspired to be a support group leader. How do I get started?  
  • What are the best ways to spread the word about my group? 
  • How do I easily access resources to share with my group?  
  • There’s a Negative Nelly in my group who won’t stop complaining and won’t take action on the group’s advice. What do I do?  
  • I’m feeling burnt out but there’s no one else to take on my group leader responsibilities. How do I engage a volunteer to help out? 

This national in-person summit will gather community + support group leaders and allies from around the country, convening prospective leaders, newbies, and veterans to connect, collaborate, and embrace the magic that happens when we come together to learn.

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Resources

News

Stay up-to-date with the latest Parkinson’s and movement disorder news and information featuring a wide range of topics and guest authors.

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Find a Local Support Group

We have an extensive database of current support groups all throughout the country. This database will allow you to search by state for a local support group in your area.

Find a Group

Find a Local Exercise Group

Movement is key to any movement disorder. That is why we have compiled this list of exercise programs for you. Search our site for a local exercise program near you.

Find a Group

Find A Clinician

Nothing is more important than communication when navigating Parkinson’s disease. At first glance, this emPowered!® tool may look like it’s a symptoms checklist, but it’s really much more. It’s a resource to help families, loved ones, and physicians communicate effectively with each other.

Find A Clinician

Medication Assistance

Stay educated on the most up-to-date financial assistance and information related to Parkinson’s and movement disorder medications.

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PD&Me Mobile App

PD&Me is PMD Alliance’s mobile app for iOS and Android designed with YOU (no matter who you are in the movement disorder journey!) in mind. The app will connect users to Parkinson’s specific support groups, exercise classes, and resources. Plus, it’s FREE!

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National, Regional, Local Organizations

We have compiled an ever-growing list of Parkinson’s and other movement disorder resources across the nation. Our goal is to provide a hub for all supports available to the community.

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Certified Parkinson Disease CareFacilities

Certified Parkinson Disease Care™ (CPDC™) facilities and companies demonstrate a commitment to training their staff to create and deliver care plans with specific attention to the symptoms, medications management, and therapy considerations typical when caring for a person with Parkinson’s disease (PD). The training includes clinical information about PD, aspects of daily care related to the aging person with PD, symptom management, patient/resident comfort, and practical staff concerns.
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emPowered!® Communication Tool

Nothing is more important than communication when navigating Parkinson’s disease. At first glance, this emPowered!® tool may look like it’s a symptoms checklist, but it’s really much more. It’s a resource to help families, loved ones, and physicians communicate effectively with each other.

Learn More
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