“What does YOPD mean?”


“Can I still work if I have Young Onset Parkinson’s?”


“How long can you live with Early Onset Parkinson’s?”

Being given a young-onset Parkinson’s (YOPD) diagnosis changes the way you see yourself, your family, and your world. You’re faced with life questions you never imagined before and finding reliable, meaningful answers can feel overwhelming.

PMD Alliance’s YOPD e-book organizes the chaos of a new diagnosis with clear, peer-inspired insights. By sharing the questions, fears, discoveries, and hopes of other people navigating YOPD, it gently and knowingly guides you from the perspective of people who have been in your shoes. Your peers share their advice on all your new considerations: whether to work or not, how to communicate with medical providers, how to talk to your kids about it, love and relationships, grief, therapies, treatments, and more.

Inside the YOPD e-book, you’ll find:

  • From Working to Not Working
  • Diagnosis & Engagement with Medical Providers
  • Navigating Medical and Health Benefits
  • The Kids – Helping Them Through Challenges
  • Love, Sex, and Relationships
  • Grief and Loss
  • A New Normal – Friends, Socialization, and Networking
  • Therapies and Treatments for Advancing Disease

Our hope is that by reading this e-book created from your peers’ experiences, you will feel seen, heard, and better equipped to ride the waves of this journey. And you will know: you are not alone.