Attending the recent ALL IN! Community & Support Group Leader Summit was an incredibly impactful experience for me, as a former Parkinson’s caregiver, as a current psychotherapist, and as a Neuro social worker. The conference brought together a unique blend of professionals and individuals personally impacted by Parkinson’s, fostering an environment of collaboration and shared learning. This blend of perspectives was unlike any other conference I’ve attended, making the event particularly valuable.
One of the most powerful moments for me came during a breakout session that focused on reframing the narrative for caregivers. Traditionally, the focus has often been on caregivers’ self-care as a means to better support their loved ones. However, this session reframed the conversation to emphasize that caregivers (or “care partners” as PMD Alliance says) deserve to care for themselves simply because they are whole people, not just because it benefits their ability to care for others. This shift in perspective deeply resonated with me and has since influenced how I approach my work with the Parkinson’s community. I’ve begun to integrate this message into my groups and programming, emphasizing that a care partner’s well-being is important on its own, not just as a means of supporting their partner.
Another deeply impactful breakout session was the art therapy workshop. This session highlighted the therapeutic potential of creative expression, offering participants a chance to explore art as a way to process emotions, reduce stress, and connect with others. The experience was eye-opening, and I saw firsthand how art therapy can provide individuals with Parkinson’s and care partners a powerful tool for healing and self-expression. It’s something I’m eager to incorporate more into my work, as it offers a unique and holistic approach to supporting the emotional well-being of those affected by Parkinson’s.
Additionally, I attended a breakout session about a Parkinson’s mentor program, which offered valuable insights on how both similar and unique programs can thrive. This session gave me a deeper understanding of how mentorship and peer support can play an essential role in navigating the complexities of Parkinson’s disease, and how these programs can be tailored to fit the specific needs of individuals and communities.
Overall, the conference was a powerful reminder of the importance of collaboration between professionals and those directly impacted by Parkinson’s. It has had a lasting impact on my approach to working with the Parkinson’s community. I left the conference with a renewed sense of purpose and a clearer understanding of how to support and uplift my community in meaningful ways.
