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Young-Onset

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Young-Onset Resources

Every person’s journey with Parkinson’s is unique, but being diagnosed at a younger-than-expected age adds complications that aren’t always addressed in typical resources for people with PD—which can make the chaos of a new diagnosis especially overwhelming and isolating.

 

But you’re not alone, and you’re in good company. Welcome to a community of care, with resources for those in the prime of their lives and every moment after.

From the very outset, I saw people much further along, but still doing all these wonderful things. I thought, ‘They’re not letting it limit them. Why should I?

Join YOPN
Young Onset Parkinson's Network

Join YOPN

YOPN is our free, private membership community for all those diagnosed with Parkinson’s or a parkinsonism in the prime of their lives (<50), as well as their care partners. Ask questions and get answers from people who have walked this path ahead of you.

The YOPN Podcast
Living Well Starts Here

The YOPN Podcast

Frank, unscripted discussions on topics that most affect People with Young Onset Parkinson’s, cohosted by Melissa Livingston, Jeremy Likness, Esther Labib-Kiyrash and Chris Sutphin. Join us to explore what living well looks like and how to get there!

Young onset parkinson's network

Carefree Retreat

At our first national Young Onset Parkinson’s Network members meeting, we unwound over a restorative and enriching weekend, surrounded by friends, peers, and mentors. 

stories featuring young-onset voices

From the Blog

“Live Your Life Anyway”: John’s 50 Years with PD
By Amanda Schwartz

“Live Your Life Anyway”: John’s 50 Years with PD

“I’m 80 years old, so what the heck?” he said, laughing. “It’s more difficult now. I’ve got a hip that needs to be replaced. My spine is misaligned and a disc in my lumbar spine is gone. But that’s just life. As long as it goes on, I’ll be happy.” 

Educating with Humor: Amber’s YOPD Advocacy
By Ashley Asti

Educating with Humor: Amber’s YOPD Advocacy

Amber admits “there are days when I’m not okay, definitely.” But being able to see humor in darkness makes the hard days easier. “When I’m laughing, when I’m joking, I can forget about my disease for five minutes.”

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