Young-Onset Parkinson's
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Young-Onset Resources
Every person’s journey with Parkinson’s is unique, but being diagnosed at a younger-than-expected age adds complications that aren’t always addressed in typical resources for people with PD—which can make the chaos of a new diagnosis especially overwhelming and isolating.
But you’re not alone, and you’re in good company. Welcome to a community of care, with resources for those in the prime of their lives and every moment after.
From the very outset, I saw people much further along, but still doing all these wonderful things. I thought, ‘They’re not letting it limit them. Why should I?
Join YOPN
YOPN is our free, private membership community for all those diagnosed with Parkinson’s or a parkinsonism in the prime of their lives (<50), as well as their care partners. Ask questions and get answers from people who have walked this path ahead of you.
The YOPN Podcast
Frank, unscripted discussions on topics that most affect People with Young Onset Parkinson’s, cohosted by Melissa Livingston, Jeremy Likness, Esther Labib-Kiyrash and Chris Sutphin. Join us to explore what living well looks like and how to get there!
YOPD Connections Group
“You’re too young to have Parkinson’s!” Loneliness, misunderstanding, and invisibility are all too common in the experience of living with Young Onset Parkinson Disease (YOPD), but we can change that. Join the conversation to build the connections, community, and resources to live better with YOPD.
YOPD Booklet
Each person’s journey with PD is unique, and the experience of being diagnosed at a younger-than-expected age adds a variety of complicating factors to the mix. In this YOPD booklet, you'll find stories and reflections shared by others with young onset Parkinson's, all including a message that says, you're not alone.
Young onset parkinson's network
YOPN Retreat
Save the date now to join fellow YOPN members and their care partners from across the country for another unforgettable, in-person gathering in sunny Tampa, FL.
stories featuring young-onset voices
From the Blog
“Live Your Life Anyway”: John’s 50 Years with PD
“I’m 80 years old, so what the heck?” he said, laughing. “It’s more difficult now. I’ve got a hip that needs to be replaced. My spine is misaligned and a disc in my lumbar spine is gone. But that’s just life. As long as it goes on, I’ll be happy.”
Educating with Humor: Amber’s YOPD Advocacy
Amber admits “there are days when I’m not okay, definitely.” But being able to see humor in darkness makes the hard days easier. “When I’m laughing, when I’m joking, I can forget about my disease for five minutes.”
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