January 8, 2025
No Mountain is Too Small: Kevin’s Cycling Success
On June 22, 2024, Kevin, a cyclist living with Parkinson’s, summited Haleakala in Hawaii. He’s believed to be the first person with Parkinson’s to summit…
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December 9, 2024
An Outpouring of Love: Remembering Dr. Johan Samanta
At his memorial service, a friend opened her tribute to Johan Samanta, MD, with a list: life lessons from Johan. She began, “Do the things…
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December 4, 2024
“We Felt Like Rock Stars”: ALL IN! Summit 2024
A few weeks ago, we had the pleasure of convening stakeholders from across the Movement Disorders Ecosystem at our ALL IN! Support Group & Community…
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November 20, 2024
Deepened Love and Admiration: The Bovinos’ Parkinson’s Journey
In 2018, Kathy Bovino went to the doctor to discuss her migraines. “I was just going over my medications,” she said. “And at the end…
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November 7, 2024
The Loss of a True Partner: Stephanie’s PD Journey
When I asked Stephanie what she misses most about Rick, her husband of 34 years who passed away with Parkinson’s disease last December, she took…
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November 6, 2024
Palliative Care is the First Step to Supportive, Total Care
My first experience with the topic of palliative care set the tone of my perception of it for almost ten years. Newly diagnosed, I had…
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October 31, 2024
“Hello Parkinson’s Disease”: A Poem
Hello Parkinson’s Disease. Although you entered my life suddenly I will try to treat you with respect, not fear. Let us behave towards each other…
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October 3, 2024
Honoring the Life of a Parent with Parkinson’s and Lewy Body Dementia
“How do you unwind a lifetime of closeness? My grief is still new.” When Maureen Simmons answered my call to talk about her mom, Patricia,…
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October 3, 2024
Low Intensity Activity and LEGO® Bricks / Baja Intensidad Actividad en Los Ladrillos LEGO®
Low Intensity Activity and LEGO Bricks I was diagnosed in 2016, and now I know that one of my first symptoms was having problems with…
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