135 Parkinson Ave.
Staten Island, NY 10305-1425
Tel: 718-981-8001; 800-223-2732; 877-223-3801 (Young Onset Center)
apda@apdaparkinson.org
APDA Website
National Resources
National Organizations
American Parkinson's Disease Association (APDA)
The Association for Frontotemporal Degeneration
290 King of Prussia Rd., Radnor Station Bldg 2, Ste 320
Radnor, PA 19087
866-507-7222
info@theaftd.org
The AFTD Website
Bachmann-Strauss Dystonia & Parkinson Foundation
P.O. Box 38016
Albany, NY 12203
212-509-0995
info@bsdpf.org
Visit Website
Caregiver Action Network (CAN)
1150 Connecticut Ave, NW, Suite 501
Washington, DC 20036-3904
202-454-3970
info@caregiveraction.org
Caregiver Action Network Website
Cure Now: PD
102 Pitkin Street
East Hartford, CT 06108
860-918-9594
Michelle Hespeler
https://curenowpd.org/
Brain Support Network
PO Box 7264
Menlo Park, CA 94026
Robin Riddle – 650-814-0848
Blog
Brain Support Network Website
Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive
Aiken, SC 29803
Randy Miles, Executive Director
Diann Shaddox Fdtn Website
Davis Phinney Foundation
357 S McCaslin Blvd, Ste 105
Louisville, CO 80027
Sarah Brockman, Program Manager – 866-358-0285
contact@dpf.org
Davis Phinney Fdtn Website
Family Caregiver Alliance
101 Montgomery St., Suite 2150
San Francisco, CA 94104
info@caregiver.org
Family Caregiver Alliance Website
Huntington’s Disease Society of America
505 Eighth Avenue / Suite 902
New York, NY 10018
800-345-HDSA (4372)
HDSAinfo@HDSA.org
HDSA Website
International Essential Tremor Foundation
P.O. Box 14005
Lenexa, KS 66285-4005
888-387-3667 (toll-free); 913-341-3880
info@essentialtremor.org
International Essential Tremor Fdtn
International Neuropalliative Care Society
5841 Cedar Lake Rd., Suite 204
Minneapolis, MN 55416
952-641-2281
info@inpcs.org
INPCS website
Lewy Body Dementia Association
912 Killian Hill Road, S.W.
Lilburn, GA 30047
LBD Caregiver Link: 888-204-3054
National Office: 404-418-7396
office@lbda.org
LBD Association Website
Michael J. Fox Foundation for Parkinson's Research
Grand Central Station
P.O. Box 4777
New York, NY 10163-4777
Veronique Enos Kaefer – 1-800-708-7644
Michael J Fox Fdtn Website
MSA Coalition
9935-D Rea Road, #212
Charlotte, NC 28277
866-737-5999
Info@multiplesystematrophy.org
MSA Coalition Website
National Ataxia Foundation
600 Highway 169 South, Suite 1725
Minneapolis, MN 55426
763-553-0020
naf@ataxia.org
National Ataxia Fdtn Website
Parkinson Alliance
P.O. Box 308
Kingston, NJ 08528-0308
Tel: 609-688-0870; 800-579-8440
Parkinson Alliance Website
Parkinson Foundation
1359 Broadway, Suite 1509
New York, NY 10018
800-473-4636
contact@parkinson.org
Parkinson Foundation Website
Parkinsons News Today
%BioNews Services, LLC
1601 Market St., Suite 20A105
Philadelphia, PA 19103
info@bionewsservices.com
Visit Website
Parkinson's Resource Organization
74-090 El Paseo, Suite 104
Palm Desert, CA 92260
Tel: 760-773-5628; 877-775-4111; 877-775-4111
info@parkinsonsresource.org
Parkinson’s Resource Website
Tremor Action Network
PO Box 5013
Pleasanton, CA 94566-0513
510-681-6565
Tremor Action Network Website
U.S. Dept of Veterans Affairs - Parkinson’s Disease Research, Education and Clinical Centers (PADRECC)
Dawn McHale, Philadelphia VAMC – 215-823-5800 ext. 2238
Lori Anzaldo, San Francisco VAMC – 415-221-4810 ext. 2485
PADRECC Website
World Parkinson Coalition Inc®
1359 Broadway
Suite 1509
NY, NY 10018 USA
646-388-7688
info@worldpdcoalition.org
World Parkinson Coalition Website
Financial Assistance
The Assistance Fund
4700 Millenia Blvd., Suite 410
Orlando, FL 32839
855-845-3663
The Assistance Fund Website
Assistance with:
– Copayments
– Insurance Premiums
– Health Care Expenses
– Incidentals
Melvin Weinstein Parkinson’s Foundation
7924 Ivanhoe Ave, Suite 2
La Jolla, CA 92037
russell@themeyrowfoundation.org
PWF Website
The only eligibility requirement is a PD diagnosis. The primary focus is to improve quality of life. Examples include: 6 month boxing membership; 3 months private physical therapy; wheelchair.
Parkinson Wellness Fund
2224 Va Beach Blvd., Suite 205
Virginia Beach, VA 23454
757-313-9729
mwpfassistance@verizon.net
MWPF Website
Funding for:
– Medical Equipment
– Medications
– Services
Education
ParkinsonTV
UR Center for Health & Technology
265 Crittenden Blvd., CU 420694
Rochester, NY 14642
Iyad Amer – info@endingpd.org
ParkinsonTV Website
Exercise & Wellness
Brian Grant Foundation
650 NE Holladay St., Suite 1600
Portland, OR 97232
Katrina Kahl – Executive Director
info@briangrant.org
Blog
Brian Grant Fdtn Website
– Non-Profit Online exercise videos
– Professional training (with CEUs)
Dance for PD® - Mark Morris Dance Group
3 Lafayette Ave.
Brooklyn, NY 11217
1-800-957-1046
Dance for PD Site
– Non-Profit Exercise Program
– Training
– DVDs
LSVT Global
4720 N. Oracle Ste. 100
Tucson, AZ 85705
888-438-5788
info@lsvtglobal.com
LSVT Global Website
– Speech and Exercise Classes
– Training
MOVE IT! - An Exercise and Mobility Guide for Parkinson's Disease
Ohana Pacific Rehab Services
354 Uluniu Street, Suite 404
Kailua, HI 96734
808-262-1118
Move It! Website
– Exercise Book and Video
Ohio Health - Delay the Disease
Rocco Presutti – 614-566-1189
delaythedisease@ohiohealth.com
DTD Website
– Non-Profit Exercise Program
– Training
Parkinson Voice Project
646 N. Coit Rd., Suite 2250
Richardson, TX 75080
469-375-6500
contact@parkinsonvoiceproject.org
Parkinson Voice Project
– Non-Profit Speech Therapy Program
– Training
Pedaling for Parkinson's
Cleveland, OH
Nan Little – 206-321-0200
Pedaling for PD
– Non-Profit Exercise Program
– Training
PWR! - Parkinson Wellness Reecovery
140 W Fort Lowell Rd
Tucson, AZ 85705
520-591-5346
info@pwr4life.org
Parkinson’s Wellness Recovery Website
– Research-based rehab and exercise therapies
– Professional education (CEU’s)
– Online Wellness Series
– Annual Week-long Retreat
Blogs
Forums
Parkinson’s Foundation – Unmoderated Forums
Open; Newly Diagnosed; Caregiver; Young Onset; DBS
Open; Newly Diagnosed; Caregiver; Young Onset; DBS