National Resources

National Organizations

American Parkinson's Disease Association (APDA)

135 Parkinson Ave.
Staten Island, NY 10305-1425
Tel: 718-981-8001; 800-223-2732; 877-223-3801 (Young Onset Center)
apda@apdaparkinson.org
APDA Website

The Association for Frontotemporal Degeneration

290 King of Prussia Rd., Radnor Station Bldg 2, Ste 320
Radnor, PA 19087
866-507-7222
info@theaftd.org
The AFTD Website

Bachmann-Strauss Dystonia & Parkinson Foundation

P.O. Box 38016
Albany, NY 12203
212-509-0995
info@bsdpf.org
Visit Website

Caregiver Action Network (CAN)

1150 Connecticut Ave, NW, Suite 501
Washington, DC 20036-3904
202-454-3970
info@caregiveraction.org
Caregiver Action Network Website

Cure Now: PD

102 Pitkin Street
East Hartford, CT 06108
860-918-9594
Michelle Hespeler
https://curenowpd.org/

Brain Support Network

PO Box 7264
Menlo Park, CA 94026
Robin Riddle – 650-814-0848
Blog
Brain Support Network Website

CurePSP

1216 Broadway, 2nd Floor
New York, NY 10001
800-457-4777
info@curepsp.org
CurePSP Website

Diann Shaddox Foundation for Essential Tremor

241 Boxelder Drive
Aiken, SC 29803
Randy Miles, Executive Director
Diann Shaddox Fdtn Website

Davis Phinney Foundation

357 S McCaslin Blvd, Ste 105
Louisville, CO 80027
Sarah Brockman, Program Manager – 866-358-0285
contact@dpf.org
Davis Phinney Fdtn Website

Family Caregiver Alliance

101 Montgomery St., Suite 2150
San Francisco, CA 94104
info@caregiver.org
Family Caregiver Alliance Website

Huntington’s Disease Society of America

505 Eighth Avenue / Suite 902
New York, NY 10018
800-345-HDSA (4372)
HDSAinfo@HDSA.org
HDSA Website

International Essential Tremor Foundation

P.O. Box 14005
Lenexa, KS 66285-4005
888-387-3667 (toll-free); 913-341-3880
info@essentialtremor.org
International Essential Tremor Fdtn

International Neuropalliative Care Society

5841 Cedar Lake Rd., Suite 204
Minneapolis, MN 55416
952-641-2281
info@inpcs.org
INPCS website

Lewy Body Dementia Association

912 Killian Hill Road, S.W.
Lilburn, GA 30047
LBD Caregiver Link: 888-204-3054
National Office: 404-418-7396
office@lbda.org
LBD Association Website

Michael J. Fox Foundation for Parkinson's Research

Grand Central Station
P.O. Box 4777
New York, NY 10163-4777
Veronique Enos Kaefer  – 1-800-708-7644
Michael J Fox Fdtn Website

MSA Coalition

9935-D Rea Road, #212
Charlotte, NC 28277
866-737-5999
Info@multiplesystematrophy.org
MSA Coalition Website

National Ataxia Foundation

600 Highway 169 South, Suite 1725
Minneapolis, MN 55426
763-553-0020
naf@ataxia.org
National Ataxia Fdtn Website

Parkinson Alliance

P.O. Box 308
Kingston, NJ 08528-0308
Tel: 609-688-0870; 800-579-8440
Parkinson Alliance Website

Parkinson Foundation

1359 Broadway, Suite 1509
New York, NY 10018
800-473-4636
contact@parkinson.org
Parkinson Foundation Website

Parkinsons News Today

%BioNews Services, LLC
1601 Market St., Suite 20A105
Philadelphia, PA 19103
info@bionewsservices.com
Visit Website

Parkinson's Resource Organization

74-090 El Paseo, Suite 104
Palm Desert, CA 92260
Tel: 760-773-5628; 877-775-4111; 877-775-4111
info@parkinsonsresource.org
Parkinson’s Resource Website

Tremor Action Network

PO Box 5013
Pleasanton, CA 94566-0513
510-681-6565
Tremor Action Network Website

U.S. Dept of Veterans Affairs - Parkinson’s Disease Research, Education and Clinical Centers (PADRECC)

Dawn McHale, Philadelphia VAMC – 215-823-5800 ext. 2238
Lori Anzaldo, San Francisco VAMC – 415-221-4810 ext. 2485
PADRECC Website

Well Spouse Association

63 West Main St, Suite H
Freehold, NJ 07728
732-577-8899
WellSpouse Website

World Parkinson Coalition Inc®

1359 Broadway
Suite 1509
NY, NY 10018 USA
646-388-7688
info@worldpdcoalition.org
World Parkinson Coalition Website

Financial Assistance

The Assistance Fund

4700 Millenia Blvd., Suite 410
Orlando, FL 32839
855-845-3663
The Assistance Fund Website
Assistance with:
– Copayments
– Insurance Premiums
– Health Care Expenses
– Incidentals

Melvin Weinstein Parkinson’s Foundation

7924 Ivanhoe Ave, Suite 2
La Jolla, CA 92037
russell@themeyrowfoundation.org
PWF Website
The only eligibility requirement is a PD diagnosis. The primary focus is to improve quality of life. Examples include: 6 month boxing membership; 3 months private physical therapy; wheelchair.

Parkinson Wellness Fund

2224 Va Beach Blvd., Suite 205
Virginia Beach, VA 23454
757-313-9729
mwpfassistance@verizon.net
MWPF Website
Funding for:
– Medical Equipment
– Medications
– Services

Education

Mediflix

Neurology Live
ParkinsonTV

UR Center for Health & Technology
265 Crittenden Blvd., CU 420694
Rochester, NY 14642
Iyad Amer – info@endingpd.org
ParkinsonTV Website

Exercise & Wellness

Brian Grant Foundation

650 NE Holladay St., Suite 1600
Portland, OR 97232
Katrina Kahl – Executive Director
info@briangrant.org
Blog
Brian Grant Fdtn Website
– Non-Profit Online exercise videos
– Professional training (with CEUs)

Dance for PD® - Mark Morris Dance Group

3 Lafayette Ave.
Brooklyn, NY 11217
1-800-957-1046
Dance for PD Site
– Non-Profit Exercise Program
– Training
– DVDs

LSVT Global

4720 N. Oracle Ste. 100
Tucson, AZ 85705
888-438-5788
info@lsvtglobal.com
LSVT Global Website
– Speech and Exercise Classes
– Training

MOVE IT! - An Exercise and Mobility Guide for Parkinson's Disease

Ohana Pacific Rehab Services
354 Uluniu Street, Suite 404
Kailua, HI 96734
808-262-1118
Move It! Website
– Exercise Book and Video

Ohio Health - Delay the Disease

Rocco Presutti – 614-566-1189
delaythedisease@ohiohealth.com
DTD Website
– Non-Profit Exercise Program
– Training

Parkinson Voice Project

646 N. Coit Rd., Suite 2250
Richardson, TX 75080
469-375-6500
contact@parkinsonvoiceproject.org
Parkinson Voice Project
– Non-Profit Speech Therapy Program
– Training

Pedaling for Parkinson's

Cleveland, OH
Nan Little – 206-321-0200
Pedaling for PD
– Non-Profit Exercise Program
– Training

PWR! - Parkinson Wellness Reecovery

140 W Fort Lowell Rd
Tucson, AZ 85705
520-591-5346
info@pwr4life.org
Parkinson’s Wellness Recovery Website
– Research-based rehab and exercise therapies
– Professional education (CEU’s)
– Online Wellness Series
– Annual Week-long Retreat

Rock Steady Boxing

Rock Steady Website
– Exercise Program
– Training

Tremble Clefs

trembleclefsinfo@gmail.com
Tremble Clefs
– Non-Profit Singing Group
– Training

Blogs

Forums