Social distancing doesn’t have to mean social isolation. In collaboration with movement disorder neurologist Indu Subramanian, MD, PMD Alliance presents a special series of online programs designed to keep you connected, social, and positive during these uncertain times. Join us to learn something new, and stay in touch – in real time – with a community of experts and allies.
Stay Connected Social Distancing Series
Upcoming Events
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Past Events and Supporting Resources
Disease Modifying Solutions for Today: Designing the Brain Gym
Ben Stecher, Author and Advocate
Friday, January 8th
Parkinson’s and Speech
Nicole Herndon, CCC-SLP
Friday December 11th
Hospitalization and Parkinson’s: What to Do, What to Know
Stephen Reich, MD
Monday December 7th
PD and Inflammation
Malú Gámez Tansey, PhD
Wednesday December 2nd
Parkinson’s and Diet: Strategies from a Neurology Dietician
Carley Rusch, MS, RDN, LDN
Monday November 30th
Overcome PD Barriers & Stay Active: Strategies from a Physical Therapist
Alison Kraus, PT, DPT, NCS
Monday November 23rd
Defining a Multidisciplinary Approach to PD
Suketu Khandhar, MD
Wednesday November 11th
A Conversation with Rasheda Ali-Walsh
Rasheda Ali-Walsh
Monday, November 9th
COVID Fatigue & PD – Social Connection as Medicine
Indu Subramanian, MD
Laurie Mischley, ND, PhD, MHP
Monday November 2nd
Music and the PD Brain
Matthew Brodsky, MD
Friday October 30th
View Recording
Wearable Metronome
WPC Virtual Singalong
Center for Music Therapy
Drumming Group: JamtownLive@gmail.com
Renee Fleming Article
https://www.taikoconservatory.org/taikoforpd
https://www.taiko-in.com/rhythmic-flow-taiko
Functional Symptoms in Parkinson’s disease
Katherin LaFaver, MD
Friday October 23rd
View Recording
https://www.neurosymptoms.org/
https://www.headspace.com/
https://www.calm.com/
https://www.tenpercent.com/
Yoga and PD: Wellness Without Limits
Matthew Sanford
Monday October 5th
Parkinson’s disease Care – A Global Perspective
Camilla Kilbane, MD
Friday October 2nd
PD Avengers: Equity to Consistent Care for People with Parkinson’s
Richelle Flanagan
Omotola Thomas
Wednesday September 30th
PD Avengers: Parkinson’s is a Whole Family Disease
Jayne Calder
Sally Bromley
Monday September 28th
https://www.bbc.co.uk/programmes/p071hchn https://youtu.be/V2x0KcGMxYU
https://vimeo.com/347625965
PD Avengers: Urgency of the Needs of PwPs
Hugh Johnston – Ontario, Canada
Gary Shaughnessy – United Kingdom
Monday September 21st
PD Avengers: The Creative, Positive Side of PD
Matt Eagles – United Kingdom
Larry Gifford – Vancouver, Canada
Friday September 18th
When Life Gives You Parkinson’s Podcast (you can stream it from your internet browser)
Also on Apple Podcast. Google Podcast.
Podcast Social Media @Parkinsonspod on Facebook, Twitter and Instagram
ParkyLife: https://www.parkylife.com/
PD Avengers www.pdavengers.com
BOOK: Ending Parkinson’s Disease https://endingpd.org/
World Parkinson Congress www.wpc2022.org
Living with Parkinson’s Disease: The Book
Irene Malaty, MD – Florida
Wissam Deeb, MD – Florida
Wednesday September 9th
Brain Fables: Meet the Authors
Alberto Espay, MD & Benjamin Stecher – Ohio
Friday September 4th
The Genetics of Parkinson’s
Matt Farrer, PhD – Florida
Monday August 31st
COVID and the Parkinson’s Mind: Apathy, Cognition and Behavior Issues
Javier Pagonabarraga, MD – Barcelona, Spain
Wednesday August 26th
Swallow Dysfunction in Parkinson’s disease
Nicole Herndon, Speech Pathologist – Florida
Monday August 24th
Clinical Trials: Patrolling the Parkinson’s Pipeline
Raj Pahwa, MD
Friday August 21st
Non-pharmacologic treatments of Parkinson disease
Hubert Fernandez, MD – Ohio
Monday August 17th
A Conversation with Kailash Bhatia, MD
Kailash Bhatia, MD, DM, FRCP, United Kingdom
Monday August 3rd
Understanding Parkinson’s through Neuropathology
Harry Vinters, MD – California
Monday July 27th
Atypical Parkinsonism: Doc, why don’t I have PD?
Irene Litvan, MD – California
Friday July 24th
World Brain Day 2020: Global Collaboration to Improve PD Care
Claudia Trenkwalder, MD – Germany
Wednesday July 22nd
Understanding and Treating Bowel Issues in Parkinson’s
Anton Emmanuel, MD – United Kingdom
Monday July 20th
Exercise-Enhanced Neuroplasticity Targeting Motor & Cognitive Function
Giselle Petzinger, MD – California
Friday July 17th
Vision in Patients with Parkinson Disease
Janet Rucker, MD – New York
Thursday July 16th
Cell Therapies for Parkinson’s: Where are we now?
Roger Barker, PhD – United Kingdom
Monday July 13th
New Frontiers in PD Therapy
Anthony Lang, MD, FRCPC – Toronto, Canada
Friday July 10th
Presymptomatic Parkinson Disease – An Opportunity for Intervention
Matthew Stern, MD – Pennsylvania
Monday July 6th
View Recording
Panorama Patient Network (Parkinson’s video library resource)
Sleep and Parkinson’s
Dr. Graham Alec Glass – Alaska
Friday June 26th
Spiritual Care and the Palliative Model
Judy Long, MA, MS – California
Wednesday June 24th
Freeze, Shuffle, Fall: Parkinson’s and Gait
Simon Lewis, MD – Australia
Friday June 12th
The Painful Parkinson’s: Range, Nature and Treatment
Professor K Ray Chaudhuri – United Kingdom
Wednesday June 10th
Introducing Neuropalliative Care
Benzi Kluger, MD, MS – New York
Monday June 8th
Tissue Biopsy, Biomarkers, and Brain Donation
Charles Adler, MD PhD – Arizona
Friday June 5th
Advance Care Planning
Maya Katz, MD – California
Wednesday June 3rd
View Recording
Prepare for Your Care Advance Directives
National POLST Form
Urinary Dysfunction in Parkinson’s
Jalesh Panicker, MD – United Kingdom
Monday June 1st
Recognising Sexual and Relationship Issues
Miriam Parry, PDNS – United Kingdom
Friday May 29th
View Recording
Download Slides
Sex and Relationships Resource from Parkinson’s UK
Pioneering Research: A Conversation with Dr. Michele Tagliati
Michele Tagliati, MD – California
Friday May 22nd
See One, Do One, Teach One: Demonstration of breathing exercises’ biologic benefit breathing exercises, and exploring grace, positivity and patience.
Sarah Kempe-Mehl, MD – California
Monday May 18th
Understanding Advance Care Planning and Hospice
Farrah Daly, MD – Virginia
Friday May 15th
Patient-Reported Outcomes in Research and Clinical Practice
Laurie Mischley, ND, PhD, MPH – Washington
Monday May 11th
View Recording
Results of Dr. Mischley’s Research
ProPD Scale and CAM Care PD Study
Seattle Integrative Medicine
Dog PD Detection Study
Battling Isolation with Artistry: Dance for PD®
David Leventhal – New York
Friday May 8th
The Mind Body Problem: Motivation, Exercise and Parkinson’s
Sarah Ingersoll, MBA – California
Monday May 4th
Adaptive Yoga: A Gentle Chair-Based Practice From Home
Sarah Brindle, PhD – California
Friday May 1st
Anxiety and the Mind-Body Connection
Sahib Khalsa, MD, PhD – Oklahoma
Wednesday April 29th
View Recording
Dr. Khalsa’s Interoception Wiki
Clinical Floatation website
PWR! Parkinson’s Wellness From Home
Becky Farley, PhD, MS, PT – Arizona
Monday April 27th
Pursuing Hope: Experimental Trials in PD
Tanya Simuni, MD – Illinois
Friday April 24th
View Recording
www.clinicaltrials.gov
Fox Trial Finder
The Future of Care for Parkinson Patients
Bastiaan Bloem, MD, PhD – The Netherlands
Thursday April 23rd
View Recording
“Hidden Sorrows” journal article
Ending Parkinson’s Disease: The Book
Cycling for freezing of gait video
A Conversation with Michael Okun: Ending Parkinson’s Disease, COVID, and Emerging Treatments
Michael Okun, MD – Florida
Friday April 17th
Tolerating Uncertainty
Tara Biller, ARNP – Washington
Monday April 13th
The COVID-19 Pandemic and Older Adults
Meena Makhijani, DO – California
Friday April 10th
STRESS: Strategies for Weathering the Coronavirus Storm
Arik Johnson, PsyD – California
Monday April 6th
Practicing Wellness to Build Resilience
Julia Alleyne, MD – Toronto, Canada
Wednesday April 1st
Optimizing Sleep: Better Rest in Restless Times
Naoya Ogura, OTD, OTR/L – California
Monday March 30th
Managing Anxiety & Depression at a Social Distance
Miki Moskowitz, PhD – Maryland
Friday March 27th
Social Connection in the Age of Social Isolation
Jori Fleisher, MD, MCSE – Illinois
Monday March 23rd
Compassion, Clarity & Community: Using Mindfulness in Uncertain Times
J. Greg Serpa, PhD – California
Friday March 20th
Staying Active During Social Distancing
Julie Hershberg, PT, DPT, NCS – California
Wednesday March 18th
Spiritual Care and the Palliative Model
Judy Long, MA, MS – California
Wednesday June 24th
Introducing Neuropalliative Care
Benzi Kluger, MD, MS – New York
Monday June 8th
Advance Care Planning
Maya Katz, MD – California
Wednesday June 3rd
View Recording
Prepare for Your Care Advance Directives
National POLST Form
Understanding Advance Care Planning and Hospice
Farrah Daly, MD – Virginia
Friday May 15th
Overcome PD Barriers & Stay Active: Strategies from a Physical Therapist
Alison Kraus, PT, DPT, NCS
Monday November 23rd
Yoga and PD: Wellness Without Limits
Matthew Sanford
Monday October 5th
Exercise-Enhanced Neuroplasticity Targeting Motor & Cognitive Function
Giselle Petzinger, MD – California
Friday July 17th
Battling Isolation with Artistry: Dance for PD®
David Leventhal – New York
Friday May 8th
Adaptive Yoga: A Gentle Chair-Based Practice From Home
Sarah Brindle, PhD – California
Friday May 1st
PWR! Parkinson’s Wellness From Home
Becky Farley, PhD, MS, PT – Arizona
Monday April 27th
Staying Active During Social Distancing
Julie Hershberg, PT, DPT, NCS – California
Wednesday March 18th
The Mind Body Problem: Motivation, Exercise and Parkinson’s
Sarah Ingersoll, MBA – California
Monday May 4th
Anxiety and the Mind-Body Connection
Sahib Khalsa, MD, PhD – Oklahoma
Wednesday April 29th
View Recording
Dr. Khalsa’s Interoception Wiki
Clinical Floatation website
Tolerating Uncertainty
Tara Biller, ARNP – Washington
Monday April 13th
STRESS: Strategies for Weathering the Coronavirus Storm
Arik Johnson, PsyD – California
Monday April 6th
Managing Anxiety & Depression at a Social Distance
Miki Moskowitz, PhD – Maryland
Friday March 27th
Living with Parkinson’s Disease: The Book
Irene Malaty, MD – Florida
Wissam Deeb, MD – Florida
Wednesday September 9th
Brain Fables: Meet the Authors
Alberto Espay, MD & Benjamin Stecher – Ohio
Friday September 4th
The Genetics of Parkinson’s
Matt Farrer, PhD – Florida
Monday August 31st
A Conversation with Kailash Bhatia, MD
Kailash Bhatia, MD, DM, FRCP, United Kingdom
Monday August 3rd
Exercise-enhanced Neuroplasticity Targeting Motor & Cognitive Function
Giselle Petzinger, MD – California
Friday July 17th
Cell Therapies for Parkinson’s: Where are we now?
Roger Barker, PhD – United Kingdom
Monday July 13th
New Frontiers in PD Therapy
Anthony Lang, MD, FRCPC – Toronto, Canada
Friday July 10th
Tissue Biopsy, Biomarkers, and Brain Donation
Charles Adler, MD PhD – Arizona
Friday June 5th
Pioneering Research: A Conversation with Dr. Michele Tagliati
Michele Tagliati, MD – California
Friday May 22nd
Patient-Reported Outcomes in Research and Clinical Practice
Laurie Mischley, ND, PhD, MPH – Washington
Monday May 11th
View Recording
Results of Dr. Mischley’s Research
ProPD Scale and CAM Care PD Study
Seattle Integrative Medicine
Dog PD Detection Study
Pursuing Hope: Experimental Trials in PD
Tanya Simuni, MD – Illinois
Friday April 24th
View Recording
www.clinicaltrials.gov
Fox Trial Finder
A Conversation with Michael Okun: Ending Parkinson’s Disease, COVID, and Emerging Treatments
Michael Okun, MD – Florida
Friday April 17th
Parkinson’s and Speech
Nicole Herndon, CCC-SLP
Friday December 11th
PD and Inflammation
Malú Gámez Tansey, PhD
Wednesday, December 2nd
Functional Symptoms in Parkinson’s disease
Katherin LaFaver, MD
Friday October 23rd
View Recording
https://www.neurosymptoms.org/
https://www.headspace.com/
https://www.calm.com/
https://www.tenpercent.com/
COVID and the Parkinson’s Mind: Apathy, Cognition and Behavior Issues
Javier Pagonabarraga, MD – Barcelona, Spain
Wednesday August 26th
Swallow Dysfunction in Parkinson’s disease
Nicole Herndon, Speech Pathologist – Florida
Monday August 24th
Clinical Trials: Patrolling the Parkinson’s Pipeline
Raj Pahwa, MD
Friday August 21st
Non-pharmacologic treatments of Parkinson’s disease
Hubert Fernandez, MD – Ohio
Monday August 17th
A Conversation with Kailash Bhatia, MD
Kailash Bhatia, MD, DM, FRCP, United Kingdom
Monday August 3rd
Understanding Parkinson’s through Neuropathology
Harry Vinters, MD – California
Monday July 27th
Atypical Parkinsonism: Doc, why don’t I have PD?
Irene Litvan, MD – California
Friday July 24th
World Brain Day 2020: Global Collaboration to Improve PD Care
Claudia Trenkwalder, MD – Germany
Wednesday July 22nd
Understanding and Treating Bowel Issues in Parkinson’s
Anton Emmanuel, MD – United Kingdom
Monday July 20th
Vision in Patients with Parkinson Disease
Janet Rucker, MD – New York
Thursday July 16th
Cell Therapies for Parkinson’s: Where are we now?
Roger Barker, PhD – United Kingdom
Monday July 13th
New Frontiers in PD Therapy
Anthony Lang, MD, FRCPC – Toronto, Canada
Friday July 10th
View Recording
Presymptomatic Parkinson Disease – An Opportunity for Intervention
Matthew Stern, MD – Pennsylvania
Monday July 6
View Recording
Panorama Patient Network (Parkinson’s video library resource)
Sleep and Parkinson’s
Dr. Graham Alec Glass – Alaska
Friday June 26th
Freeze, Shuffle, Fall: Parkinson’s and Gait
Simon Lewis, MD – Australia
Friday June 12th
The Painful Parkinson’s: Range, Nature and Treatment
Ray Chaudhuri, DSc, FRCP, MD – United Kingdom
Wednesday June 10th
King’s PD Pain Scale Questionnaire (coming soon)
Dr. Chaudhuri’s Google Scholar page
Acupuncture and Pain study
Urinary Dysfunction in Parkinson’s
Jalesh Panicker, MD – United Kingdom
Monday June 1st
Recognising Sexual and Relationship Issues
Miriam Parry, PDNS – United Kingdom
Friday May 29th
View Recording
Download Slides
Sex and Relationships Resource from Parkinson’s UK
Anxiety and the Mind-Body Connection
Sahib Khalsa, MD, PhD – Oklahoma
Wednesday April 29th
View Recording
Dr. Khalsa’s Interoception Wiki
Clinical Floatation website
The Future of Care for Parkinson Patients
Bastiaan Bloem, MD, PhD – The Netherlands
Thursday April 23rd
View Recording
“Hidden Sorrows” journal article
Ending Parkinson’s Disease: The Book
Cycling for freezing of gait video
A Conversation with Michael Okun: Ending Parkinson’s Disease, COVID, and Emerging Treatments
Michael Okun, MD – Florida
Friday April 17th
Optimizing Sleep: Better Rest in Restless Times
Naoya Ogura, OTD, OTR/L – California
Monday March 30th
Managing Anxiety & Depression at a Social Distance
Miki Moskowitz, PhD – Maryland
Friday March 27th
Hospitalization and Parkinson’s: What to Do, What to Know
Stephen Reich, MD
Monday December 7th
Parkinson’s and Diet: Strategies from a Neurology Dietician
Carley Rusch, MS, RDN, LDN
Monday November 30th
Defining a Multidisciplinary Approach to PD
Suketu Khandhar, MD
Wednesday November 11th
A Conversation with Rasheda Ali-Walsh
Rasheda Ali-Walsh
Monday November 9th
COVID Fatigue & PD – Social Connection as Medicine
Indu Subramanian, MD
Laurie Mischley, ND, PhD, MHP
Monday November 2nd
View Recording
Presentation slides
- https://bastyr.edu/research/studies/complementary-alternative-medicine-care-parkinsons-disease-cam-care-pd
- http://parkinsonsecrets.com/blog/2020/9/14/the-pandemic-of-loneliness-a-pandemic-within-pandemics
-
Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life: https://www.nature.com/articles/s41531-020-00128-9
-
Hoping for the best, planning for the worst: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7537621/
- https://search.bvsalud.org/global-literature-on-novel-coronavirus-2019-ncov/resource/en/covidwho-864022
Music and the PD Brain
Matthew Brodsky, MD
Friday October 30th
View Recording
Wearable Metronome
WPC Virtual Singalong
Center for Music Therapy
Drumming Group: JamtownLive@gmail.com
Renee Fleming Article
https://www.taikoconservatory.org/taikoforpd
https://www.taiko-in.com/rhythmic-flow-taiko
Parkinson’s disease Care – A Global Perspective
Camilla Kilbane, MD
Friday October 2nd
PD Avengers: Equity to Consistent Care for People with Parkinson’s
Richelle Flanagan
Omotola Thomas
Wednesday September 30th
PD Avengers: Parkinson’s is a Whole Family Disease
Jayne Calder
Sally Bromley
Monday September 28th
https://www.bbc.co.uk/programmes/p071hchn https://youtu.be/V2x0KcGMxYU
https://vimeo.com/347625965
PD Avengers: Urgency of the Needs of PwPs
Hugh Johnston – Ontario, Canada
Gary Shaughnessy – United Kingdom
Monday September 21st
PD Avengers: The Creative, Positive Side of PD
Matt Eagles – United Kingdom
Larry Gifford – Vancouver, Canada
Friday September 18th
When Life Gives You Parkinson’s Podcast (you can stream it from your internet browser)
Also on Apple Podcast. Google Podcast.
Podcast Social Media @Parkinsonspod on Facebook, Twitter and Instagram
ParkyLife: https://www.parkylife.com/
PD Avengers www.pdavengers.com
BOOK: Ending Parkinson’s Disease https://endingpd.org/
World Parkinson Congress www.wpc2022.org
Spiritual Care and the Palliative Model
Judy Long, MA, MS – California
Wednesday June 24th
Recognising Sexual and Relationship Issues
Miriam Parry, PDNS – United Kingdom
Friday May 29th
View Recording
Download Slides
Sex and Relationships Resource from Parkinson’s UK
See One, Do One, Teach One: Demonstration of breathing exercises’ biologic benefit, and exploring grace, positivity and patience.
Sarah Kempe-Mehl, MD – California
Monday May 18th
Patient-Reported Outcomes in Research and Clinical Practice
Laurie Mischley, ND, PhD, MPH – Washington
Monday May 11th
View Recording
Results of Dr. Mischley’s Research
ProPD Scale and CAM Care PD Study
Seattle Integrative Medicine
Dog PD Detection Study
The Mind Body Problem: Motivation, Exercise and Parkinson’s
Sarah Ingersoll, MBA – California
Monday May 4th
The COVID-19 Pandemic and Older Adults
Meena Makhijani, DO – California
Friday April 10th
Practicing Wellness to Build Resilience
Julia Alleyne, MD – Toronto, Canada
Wednesday April 1st
Optimizing Sleep: Better Rest in Restless Times
Naoya Ogura, OTD, OTR/L – California
Monday March 30th
Social Connection in the Age of Social Isolation
Jori Fleisher, MD, MCSE – Illinois
Monday March 23rd
Compassion, Clarity & Community: Using Mindfulness in Uncertain Times
J. Greg Serpa, PhD – California
Friday March 20th
Staying Active During Social Distancing
Julie Hershberg, PT, DPT, NCS – California
Wednesday March 18th
